My son had tarsal coalitions, (bones in his feet fused together) and we 
started that journey with a gait analysis.
http://pics.buckosoft.com/pic?b2005062205

I was excited to get a copy of the data. I thought I could POV-Ray the 
data.  The hospital said they couldn't give me the data because of 
HIPAA.  I asked the nurse what she meant. She said HIPAA was about data 
privacy.  I said, no, the "P" in HIPAA actually means Portability, and 
you have to provide me with the data in a reasonable format that I can 
take to another health care provider. No vendor lock-in.  I was getting 
upset, on principle, by then, because they were idiots. My wife was 
trying to distract me from my quest and calm me down.

I pointed out they were actually in violation of HIPAA.  That got their 
attention a little.  So they come back with "we can't give you the data 
because we can't get it off of the machine."  I asked "what is the point 
of the ethernet connection to the machine?"

Anyway, checkmate. I lost.

As we're leaving, they asked my wife to sign a waiver so they could use 
the data for training purposes.  I overheard this and lost my shit.  I 
was foaming. I screamed, "how can you use the data for training if you 
can't get it off the machine!?!?"

My wife grabbed my arm and dragged me out ranting.

Then we went for ice cream.

-- 
dik
Rendered 920576 of 921600 pixels (99%)

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On 09/02/2018 00:10, dick balaska wrote:
> My son had tarsal coalitions, (bones in his feet fused together) and we 
> started that journey with a gait analysis.
> http://pics.buckosoft.com/pic?b2005062205
> 
> I was excited to get a copy of the data. I thought I could POV-Ray the 
> data.  The hospital said they couldn't give me the data because of 
> HIPAA.  I asked the nurse what she meant. She said HIPAA was about data 
> privacy.  I said, no, the "P" in HIPAA actually means Portability, and 
> you have to provide me with the data in a reasonable format that I can 
> take to another health care provider. No vendor lock-in.  I was getting 
> upset, on principle, by then, because they were idiots. My wife was 
> trying to distract me from my quest and calm me down.
> 
> I pointed out they were actually in violation of HIPAA.  That got their 
> attention a little.  So they come back with "we can't give you the data 
> because we can't get it off of the machine."  I asked "what is the point 
> of the ethernet connection to the machine?"
> 
> Anyway, checkmate. I lost.
> 
> As we're leaving, they asked my wife to sign a waiver so they could use 
> the data for training purposes.  I overheard this and lost my shit.  I 
> was foaming. I screamed, "how can you use the data for training if you 
> can't get it off the machine!?!?"
> 
> My wife grabbed my arm and dragged me out ranting.
> 
> Then we went for ice cream.
> 

How frustrating. You should apply for your data in writing.

I can understand you losing it when the other person is just plain wrong 
and being obstructive.
I got the brush off by being told that the tech was too busy setting the 
machine up for the next patient. But then I don't think I would be 
publishing images of my guts and bahookie. ;-)


-- 

Regards
     Stephen

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On Thu, 08 Feb 2018 19:10:15 -0500, dick balaska wrote:

> My son had tarsal coalitions, (bones in his feet fused together) and we
> started that journey with a gait analysis.
> http://pics.buckosoft.com/pic?b2005062205
> 
> I was excited to get a copy of the data. I thought I could POV-Ray the
> data.  The hospital said they couldn't give me the data because of
> HIPAA.  I asked the nurse what she meant. She said HIPAA was about data
> privacy.  I said, no, the "P" in HIPAA actually means Portability, and
> you have to provide me with the data in a reasonable format that I can
> take to another health care provider. No vendor lock-in.  I was getting
> upset, on principle, by then, because they were idiots. My wife was
> trying to distract me from my quest and calm me down.
> 
> I pointed out they were actually in violation of HIPAA.  That got their
> attention a little.  So they come back with "we can't give you the data
> because we can't get it off of the machine."  I asked "what is the point
> of the ethernet connection to the machine?"
> 
> Anyway, checkmate. I lost.
> 
> As we're leaving, they asked my wife to sign a waiver so they could use
> the data for training purposes.  I overheard this and lost my shit.  I
> was foaming. I screamed, "how can you use the data for training if you
> can't get it off the machine!?!?"
> 
> My wife grabbed my arm and dragged me out ranting.
> 
> Then we went for ice cream.

Sheesh.  That's just crazy.



-- 
"I learned long ago, never to wrestle with a pig. You get dirty, and 
besides, the pig likes it." - George Bernard Shaw

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That's really ridiculous. Although, I kind of had a suspicion that you would run
into such trouble. Apparently, doctors just don't want to give their 'secret
medical data' to a patient-- as if it's 'proprietary' or something, belonging
only to them. (Or maybe they're worried about malpractice claims?) I suspect
that the policy differs from doctor to doctor! (in other words, NO real policy.)
Or else they don't know what's legal and what's not.

I have a friend who has more-than-usual health problems-- and she is *dogged*
about about getting whaever info she needs from a doctor. HOW she does it I
don't know-- I think doctors groan when they see her coming. (She actually has
some mediacal training of some sort-- and isn't easily put off with glib
answers.)

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On 02/09/2018 02:14 AM, Stephen wrote:
>  But then I don't think I would be
> publishing images of my guts and bahookie. ;-)
> 
> 

I broke my wrist and went to Yale. I asked for the data and she 
immediately handed me a card with the pickup address. She typed it in 
the computer and by the time I walked to the pickup place, a CD loaded 
with uncompressed TGAs awaited me.

But I never thought of asking for my colonoscopy results. :D


-- 
dik
Rendered 920576 of 921600 pixels (99%)

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On 11/02/2018 02:47, dick balaska wrote:
> On 02/09/2018 02:14 AM, Stephen wrote:
>>  But then I don't think I would be
>> publishing images of my guts and bahookie. ;-)
>>
>>
> 
> I broke my wrist and went to Yale. I asked for the data and she 
> immediately handed me a card with the pickup address. She typed it in 
> the computer and by the time I walked to the pickup place, a CD loaded 
> with uncompressed TGAs awaited me.
> 

That's the way it should be done.

> But I never thought of asking for my colonoscopy results. :D
> 
> 

Whyever not? ;-)

-- 

Regards
     Stephen

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I went to have a CT scan this morning. I felt awkward asking for copies 
of the images, so I didn't.


Mike

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